Wednesday, September 10, 2008

Updates: What's going on over here...

Mike got out of the hospital yesterday! HOORAY! He was there three days longer than he planned since he got some kind of allergic reaction to the tape they were using on his body. He's doing much better post op than the last time. We got the path report back and it was cancer they took off that right kidney. There is a rating scale where they rate it from 1-4 least aggressive to most and his was a 3. Thank goodness everything worked out like it did with him because in five years he may have lost that kidney and we'd have been looking for a donor for him because the left still wouldn't have been good. It's amazing that we found it and according to the doc they don't think it will grow back. The margins were all zero which basically means that what they got out around his kidney didn't have cancer in it. He'll go back in six months and I suspect once a year after that to make sure there is nothing growing back!

I've been getting to know my out patient rehab people this week. I'm scheduled to do Physical, Occupational and speech therapy 3 times a week for four weeks. I'm doing it at Northside Cherokee since it's an easier (stress free) drive from my house. This week was evaluation time. I met with PT and OT yesterday to eval and again today to start working. Tomorrow I meet with everyone again and my speech therapist. Speech is interesting it is a lot more logistics than what you would think. At least at Emory they really get you working on your cognitive thought. It's basically to get a person to be able to get back into planning mode and making lists etc for what you need to get done. My OT person was a lot like that today so I'm not sure what to expect from NSH yet. So this week there is something every day but after this week it should slow down a bit til the week in October when I finally see all my docs. I still have to do a follow up with my OB after Brooke (Crazy huh? that seems a year ago to me now) and I have to see my regular internist and let him know all the newest news. I get to go back to Emory early October to see my brain surgeon (how weird does that sound) to talk about what's next for me with recovery and when I get to have my next surgery to put the skull flap back on. It's so weird to me that I just went from having an 8.7 oz baby to a piece of my skull in my belly. Yet, I'm SOOOOOOOO Lucky! They tell me typically is 2-3 months from the first surgery so I'm not sure if I'll have this done this year or next year. I'm just determined that I don't want it to interfere with Halloween. I look so forward to that every year and I'm determined to take Lindsay trick or treating again this year over at her cousins. The hospital stay for the next surgery could be 3-4 days so I really hope it comes in early November personally. Besides this could be the year I could really do up Halloween myself right?! MIke and I have been joking about getting glow in the dark paint for our scarred up areas! You have to laugh at this kind of stuff to get through it I tell you!

We're off to go put in a visit to LIndsay at her grandparents. Not sure how we're working the big Mommy has to leave but we're going to try it. I'll let you all know how it goes!

5 comments:

Anonymous said...

i'm so glad things are going well for both you & mike.

and, yes, when "bad" things happen, you do have to find some humor in it (the glow in the dark paint!) or you'll never make it through. :0)

i hope the visit with lindsay goes well. not too many tears! (from you or linds). be sure to let us know how it goes.

love you much!

Anonymous said...

your family has been in my constant thoughts and prayers, CHris. and Brooke is just beautiful! oh my gosh, y'all make some gorgeous babies!

all my love to you and Mike and the girls. :)

MBKimmy said...

so glad they found mike's problem early!!!
praying that the visit with Lind goes well!!!
and as always you are in my prayers!

Anonymous said...

I heard Linds visit with you was great! I'm so proud of you! Brooke looks adorable! Love, Donna

Andrea said...

Wow, I'm all emotional over this post. How hard this must have been on you! I can't even imagine. You are such a strong woman and an amazing role model for your girls.